The Call

I got the call yesterday from my infertility specialist, she's the one that performed my hysteroscopy on the 15th. The news isn't good. She says that I do indeed have Endometrial Hyperplasia. There are 4 stages to this. Right now basically I am in the pre-cancerous stage (Simple to Complex). If it was cancer the word Atypia would accompany it. Thankfully, while this is scary, it is very treatable but it does increase my chances of Uterine Cancer about 100% in my life time. I am going to go on a 3 month treatment of Progesterone....40mg twice a day (this is a very high dosage). Then I will go back in, in Sept for another hysteroscopy to see if the treatment helped to regress the Endometrial Hyperplasia. If it did, they want a pregnancy ASAP and of course for us that means going back on infertility treatments. The reason for this is because your body produces large amounts of natural progesterone during pregnancy which would be a huge plus for me and then if you BF, you produce progesterone during that time...but it can't be supplemental BFing. If it hasn't regressed or has progressed even further, then it is a hysterectomy ASAP. That means no more trying for a 2nd baby, that means God has chosen our path in life for sure. I know that may sound harsh to some, but I have and will always believe that God gives us burdens like this for a reason (sometimes it is just to grow in Him as His child), we might not understand it at the time it is going on but He will let know His reasons and purpose when the time is right. God is in control ultimately. I can lean on Him and He will carry me when I need to be carried down this path of life. Sure I get upset and depressed at times (I spent most of yesterday afternoon crying), after all I am only human and I don't fully understand the whole reason for this path that I am on but I know that ultimately God does and I trust Him. I want to remind everyon if you are facing a trial in your life that deals with your health, you are your own best advocate when it comes to your body, your disease and what you want to happen but ALWAYS take it to God in Prayer and seek His guidance. I have found during this journey that not all doctors or specialist know everything that there is to be known about your disease, and they defiantly don't always tell you everything that you need to know about it either. Research, read, chat with others, seek 2nd opinions and most importantly take care of your body. If you have PCOS like me, did you know that there are ways you can reverse it...it wont make it go away but you can keep it and those nasty other little friends of it undercontrol and live almost symptom free. Keeping your weight in check is one of the best ways, but you see no one (doctors) ever told me that. I see an endocronologist and she has never once in over the 2 yrs I have been seeing her mentioned loosing weight, even when I started gaining more. I always thought it was because she knew how hard it is for a PCOS woman to loose weight...but watching your calorie and carb intake, and exercising (and not being seditary) is one of the best things we PCOS girls can do for our bodies.

The Big Day

Well, today is the "big" day...surgery day. I am some what scared but know that this will help to determine why my lining doesn't want to seem to thin down like it is suppose to. I am so worried that they will find cancer. You know I never thought that I would ever say that word when refering to me, but then again I bet everyone in the world, especially those with cancer say the same thing. Praying for a uneventful surgery and a speedy recovery.

Pre-Operation Appointment

Went in to the doctor today for the pre-opt appointment about the hysteroscopy and DNC. It was a good appointment over all. I was informed however of the risks that can accompany these procedures. There is a chance that the uterus is punctured and then they will have to stop the procedure or they could do a laperoscopy and sew the puncture closed and continue. Oh Joy! That sounds like fun, not! There is also a chance of hemorrhaging, infection and scaring. If a polyp is found they will scrap just that area and send it off to the lab, if no polyp is found then they will scarp the whole uterine lining and send it off to the lab. If all comes back clear we can proceed with the fertility treatments...she did say even if it comes back with a probability of cancer, we could still do the treatments. Praying, Praying!

It's Finalized

Today, is was the first day of Homeschool Convention and guess what I get less than an hour there... the phone call from the surgery scheduler. I have to go in on the 10th of June for a Pre-Operation Appointment, the Hysteroscopy and DNC is scheduled for the 15th of June at 1pm. I then have to wait until the 28th of June to go in for the Post-Operation Follow-Up Appointment. BREATHING!!!! God is in Control!

OK, Take A Deep Breath and Breath!

Heard back from the nurse, she said not to go forward with the fertility treatments. They want to do a surgical hysteroscopy and scraping of the uterine lining. They feel that there might be polyps or something else that isn't allowing the lining to thin like it should. Here comes those words again...Endometrial Hyperplasia and Cancer. Trying very hard to remember to take it 1 day at a time, breath and God is in control! I have to wait now for the gal from the clinic who schedules the surgeries to call me back...and they couldn't tell me when exactly that might be...so it is wait again!

Seriously??!!!???

Seriously? My lining is 13mm thick (it should be less than 5mm). So here we go again with the Endometrial Hyperplasia. The nurse wants to wait to talk to the doctor and she wont be in until tomorrow but she did speak with the other doctors that are in the office and they said not to start the fertility treatments, that the thickness of my lining is of great concern to them. I feel like I just hit a brick wall and took about 10 steps backward on this journey. While I know ultimately this is all in God's hands...why this again? So once again, I wait to hear what I am to do.