This blog is about my journey with Polycystic Ovarian Syndrome (PCOS) and being diagnosed with Endometrial Hyperplasia. Until the diagnoses of EH we were trying to get pregnant with baby #2.
Wednesday, June 23, 2010
The Call
I got the call yesterday from my infertility specialist, she's the one that performed my hysteroscopy on the 15th. The news isn't good. She says that I do indeed have Endometrial Hyperplasia. There are 4 stages to this. Right now basically I am in the pre-cancerous stage (Simple to Complex). If it was cancer the word Atypia would accompany it. Thankfully, while this is scary, it is very treatable but it does increase my chances of Uterine Cancer about 100% in my life time. I am going to go on a 3 month treatment of Progesterone....40mg twice a day (this is a very high dosage). Then I will go back in, in Sept for another hysteroscopy to see if the treatment helped to regress the Endometrial Hyperplasia. If it did, they want a pregnancy ASAP and of course for us that means going back on infertility treatments. The reason for this is because your body produces large amounts of natural progesterone during pregnancy which would be a huge plus for me and then if you BF, you produce progesterone during that time...but it can't be supplemental BFing. If it hasn't regressed or has progressed even further, then it is a hysterectomy ASAP. That means no more trying for a 2nd baby, that means God has chosen our path in life for sure. I know that may sound harsh to some, but I have and will always believe that God gives us burdens like this for a reason (sometimes it is just to grow in Him as His child), we might not understand it at the time it is going on but He will let know His reasons and purpose when the time is right. God is in control ultimately. I can lean on Him and He will carry me when I need to be carried down this path of life. Sure I get upset and depressed at times (I spent most of yesterday afternoon crying), after all I am only human and I don't fully understand the whole reason for this path that I am on but I know that ultimately God does and I trust Him. I want to remind everyon if you are facing a trial in your life that deals with your health, you are your own best advocate when it comes to your body, your disease and what you want to happen but ALWAYS take it to God in Prayer and seek His guidance. I have found during this journey that not all doctors or specialist know everything that there is to be known about your disease, and they defiantly don't always tell you everything that you need to know about it either. Research, read, chat with others, seek 2nd opinions and most importantly take care of your body. If you have PCOS like me, did you know that there are ways you can reverse it...it wont make it go away but you can keep it and those nasty other little friends of it undercontrol and live almost symptom free. Keeping your weight in check is one of the best ways, but you see no one (doctors) ever told me that. I see an endocronologist and she has never once in over the 2 yrs I have been seeing her mentioned loosing weight, even when I started gaining more. I always thought it was because she knew how hard it is for a PCOS woman to loose weight...but watching your calorie and carb intake, and exercising (and not being seditary) is one of the best things we PCOS girls can do for our bodies.
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